Search Results for 'Spinal muscular atrophy'

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Afternoon Dancing in Claregalway’s SMA House

The benefits of afternoon social dancing are manifold — it helps reduce stress and tension, increaes muscle tonw and coordination and lowers your risk of heart disease.

Getting Molli moving

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In a time when the world seems consumed by the Covid-19 pandemic, it can be easy to forget there are other conditions with which people are living. This week the Galway Advertiser spoke to Amanda O’Malley about her family’s fundraising campaign Le Chéile do Molli - Let’s get Molli Moving for daughter Molli who suffers from the rare spinal muscular atrophy (SMA) Type 1.

Access to SMA medication welcomed by Cannon

The decision by the HSE to approve access to a particular medication for children with Spinal Muscular Atrophy (SMA) is welcome news for families affected, East Galway’s Minister Ciaran Cannon has said.

Approval of Spinraza welcomed by local representatives

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Fianna Fáil TD for Mayo, Lisa Chambers, has welcomed the long awaited approval of the drug, Spinraza, for children suffering with Spinal Muscular Atrophy.

 

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