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In a time when the world seems consumed by the Covid-19 pandemic, it can be easy to forget there are other conditions with which people are living. This week the Galway Advertiser spoke to Amanda O’Malley about her family’s fundraising campaign Le Chéile do Molli - Let’s get Molli Moving for daughter Molli who suffers from the rare spinal muscular atrophy (SMA) Type 1.

Fianna Fáil TD for Mayo, Lisa Chambers, has welcomed the long awaited approval of the drug, Spinraza, for children suffering with Spinal Muscular Atrophy.