Search Results for 'Genodermatoses'

Down Syndrome Galway's annual Christmas Fun Swim is taking place again this year on Christmas morning. The event is open to all ages and all levels of ability. Participants do not need to be a swimmer to participate, just be willing to walk, run or jump in to the sea on Christmas morning. Getting wet is what it is all about.

A large convoy of cyclists and supporting vehicles will pass through the area twice this weekend. The group, Maynooth Students for Charity, will be taking part in the annual Galway Cycle.

A charity boss who lost his daughter to a genetic skin blistering condition will pull a 16-year-old boy in a specially converted shopping trolley from Clifden to Galway next month.

Research is under way at NUI Galway to develop a wound dressing for people suffering from the genetic skin blistering condition Epidermolysis Bullosa, (EB).

Debra Ireland is calling on Kilkenny people to take part in The West Coast Trek. This is a two day national fund-raising event which will take place in Connemara from the 9th-10th October 2010 in aid of Debra Ireland.

Epidermolysis Bullosa (EB) is a genetic skin disease where blistering occurs on the skin and on internal linings such as the mouth and the intestines. It is believed to occur in an estimated one out of every 50,000 births worldwide. Those affected are often described as ‘butterfly children’ as their skin is as fragile as a butterfly’s wings.

Every child under the age of seven should be cajoled, persuaded, and encouraged to start developing a hobby or skill, which potentially will have a huge positive impact in their life, this is according to Seán Connaughton who was a guest speaker at the annual conference of the Turner Contact Group Ireland recently.

Local heart charity Croí has announced the appointment of Edel Lambe as its new fundraising manager.