Search Results for 'Epidermolysis Bullosa'

A charity boss who lost his daughter to a genetic skin blistering condition will pull a 16-year-old boy in a specially converted shopping trolley from Clifden to Galway next month.

Debra Ireland is calling on Kilkenny people to take part in The West Coast Trek. This is a two day national fund-raising event which will take place in Connemara from the 9th-10th October 2010 in aid of Debra Ireland.

Epidermolysis Bullosa (EB) is a genetic skin disease where blistering occurs on the skin and on internal linings such as the mouth and the intestines. It is believed to occur in an estimated one out of every 50,000 births worldwide. Those affected are often described as ‘butterfly children’ as their skin is as fragile as a butterfly’s wings.