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Approval of Spinraza welcomed by local representatives

Sun, Jun 16, 2019

Fianna Fáil TD for Mayo, Lisa Chambers, has welcomed the long awaited approval of the drug, Spinraza, for children suffering with Spinal Muscular Atrophy.

Speaking on the matter Deputy Chambers said: "I am absolutely thrilled to see that the approval for Spinraza has finally been granted. It has been a long and stressful road for these children and their parents and I am just over the moon to see the fight has finally been won.

"Spinraza is the only treatment on the market for spinal muscular atrophy, which affects 25 children in the state. The drug is very expensive and without HSE reimbursement there is no way that these families could have afforded it. With the approval of the drug by the HSE these children will now get the much needed, life changing treatment they deserve.”


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